Our Mission

Our Story

The CDH Foundation began as a promise from a mother to her daughter. After receiving the devastating diagnosis of CDH, Becca was heartbroken and terrified. To make matters worse there was no one in her community who could begin to understand what she was going through. Isolation became one of her biggest challenges. In those early days Becca promised her daughter Lily that no matter the outcome, she would find a way to help make sure others never feel alone on this journey. The CDH Foundation strives to do just that. We provide not only financial support but emotional support though the facilitation of small groups. We want others to feel seen, heard and loved no matter where they are on their journey. CDH is heavy and no one should carry it alone. We are honored to walk beside you as you navigate life with CDH.

Our Programs

For families who bring their little fighters home we are happy to provide monthly small groups to connect CDH parents. Additionally we provide financial grants should your child have to be re-hospitalized. You qualify for a grant beginning at day 2 of your hospital stay and then an additional grant after 2 weeks.

For families who must say goodbye to their little fighters we provide a peer led grief support group as well as financial grants to offset the cost of funeral related expenses. It is our hope to relieve some of the financial burden of loss so that parents can focus on the important work of grieving.

For families in their initial NICU stay we provide transfer grants if you must seek a higher level of care to help with your child’s survival.