We provide a variety of services to help you navigate your new normal.
Resources:
Helpful information for your family and friends regarding your child’s medical complexities.
Helpful questions for selecting the right pediatrician to treat your baby once you are home from the NICU
Connection:
Grief Share - Are you the parent of a CDH angel? Join us for a monthly grief support group and connect with other parents who have also experienced loss.
Sip & Share - If you love to read, laugh and connect then grab your beverage of choice and join us for our monthly book club.
RealTalk: CDH Podcast - Join us as we connect with other moms to share the ups, the downs and the in-betweens that make up this journey. Episodes release monthly and are available on Apple podcasts, Spotify or anywhere you like to listen!
Support:
Re-hospitalization Grant - Offered to families whose CDH children have been re-hospitalized for 2+ days to help offset costs associated with the hospital stay.
Loss Grant - Offered to families who have lost their children to CDH to help with funeral related expenses.
Transfer Grant - Offered to families in their initial NICU stay who must transfer to receive a higher level of care to increase their child's chance of survival.
Extended Stay NICU Grant - Offered to families in their initial NICU stay who are inpatient for 12+ months.