Our Mission
Supporting CDH families with help, hope, and love through every step of their journey.
“97% of families who bring their children home face re-hospitalization within one year.”
HELP | Easing the Burden
Financial Support & Resources
A CDH diagnosis can bring unexpected challenges. Through financial assistance grants, trusted resources, and compassionate guidance, we help families navigate some of the most difficult moments of their journey.
Re-hospitalization • Hospital transfers • Extended NICU stays • Loss support
HOPE | Inspiring Every Journey
Education & Encouragement
Knowledge brings confidence, and shared stories bring hope. Through awareness initiatives, educational resources, and our RealTalk: CDH podcast, we empower families and amplify the voices of the CDH community.
CDH awareness • Education • Family stories • Expert conversations
LOVE | Building Lasting Connections
Community & Connection
No family should face CDH alone. Through peer support groups, grief support, community gatherings, and our annual Family Reunion & Memorial Walk, we create meaningful connections and honor every child's journey.
Peer support • Grief Share • Family reunion • Remembrance