What will your sponsorship be used for?
We will use all funds donated to provide families who have been affected by congenital diaphragmatic hernia (CDH) with a memorable event including food, music, activities for children and a lovely environment where they can connect with others who have faced this diagnosis.
What is CDH?
Congenital Diaphragmatic Hernia is a rare disease that has no known cause yet a significant mortality rate of between 30-50%. While en-utero the diaphragm does not fully form allowing the abdominal organs to migrate into the chest cavity putting pressure on the baby’s heart and lungs. This inhibits lung growth leading to the need for life support once the child is born. In some cases this includes the highest form of life support ECMO. For more information please visit here.
Who are we?
The CDH Foundation began as a promise from a mother to her daughter. After receiving the devastating diagnosis of CDH, Becca was heartbroken and terrified. To make matters worse there was no one in her community who could begin to understand what she was going through. Isolation became one of her biggest challenges. In those early days Becca promised her daughter Lily that no matter the outcome, she would find a way to help make sure others never feel alone on this journey. The CDH Foundation strives to do just that. We provide not only financial support but emotional support though the facilitation of small groups. We want others to feel seen, heard and loved no matter where they are on their journey. CDH is heavy and no one should carry it alone. We are honored to walk beside families as they navigate life with CDH. To learn more about our programming visit here.