Meet Oliver...

Meet Oliver…

An unexpected miracle after devastating loss.

On August 1, 2020 Kimberly and her husband Carlos discovered they were pregnant. Instead of being excited and jumping for joy, they felt only fear. You see, this was not Kimberly’s first pregnancy. It was not her second pregnancy. It was her third pregnancy and yet she and Carlos remained childless. Their journey to parenthood began in April 2017 when at 16 weeks pregnant it was discovered that their daughter Felicity had no heartbeat. “It was my worst nightmare come true,” remembers Kimberly.

After months of grieving, she and her husband began trying to conceive again. She would go on to have 2 more miscarriages before deciding to seek the help of a fertility specialist. In July of 2018, they became pregnant, this time with a little boy! Dominick. They were ecstatic! Everything seemed perfect. The progesterone injections were working and the pregnancy was progressing. This excitement came to an end at their 12 week ultrasound when they were told 4 words that would change their lives forever…  “Your baby has CDH.”

“I could not believe this was happening, after everything we had been through. I was numb and shocked.”

Kimberly was referred to Johns Hopkins Maternal Fetal Medicine in Baltimore for the remainder of her pregnancy. At their 20 week visit they were told their son’s CDH was extremely severe and they were encouraged to think about Dominick's quality of life. 

“We were faced with the biggest decision… They made it seem like our only choice was to terminate him.” 

Utter devastation. Uncontrollable crying. Questioning. Becoming physically ill. Praying to wake up from this nightmare… and yet again, leaving the hospital with empty arms. It would be months before they felt any semblance of normalcy. She and Carlos could not fathom going through this heartache again so they made the decision to stop. To stop trying, hoping, praying, believing that bringing a baby home would be in their future.

Surprise! Fast forward to August 1, 2020, they discovered they were pregnant. On December 2, 2020, she and Carlos sat at their 20 week anatomy scan hearing yet again, “Your son has CDH.”

“Why? Just Why?!”

This time they were referred to the Children's Hospital of Philadelphia (CHOP). With the team at CHOP behind them every step of the way, Kimberly and her husband vowed to do everything they could to save their son. Things would be different for Oliver. While filled with fear, this time they were also filled with something else. Hope. The staff at CHOP are experienced with CDH and were ready to fight this diagnosis right alongside Kimberly and her husband.

On April 7, 2021 Oliver Allen Spriggs made his grand entrance into the world.



He was immediately intubated and at 4 hours old he was placed on ECMO. He was stable enough to have his repair surgery at 20 days old.



Then at 34 days old, the seemingly impossible happened…

Kimberly was finally able to hold her miracle baby in her arms.

Ollie still had a battle ahead, fighting infections that would nearly cost him his life. With his mommy and daddy, and the incredible team at CHOP by his side he faced each and every one of them!

After 351 long days in the NICU, Kimberly and Carlos left the hospital yet again, this time their arms were not empty.

In January of 2023, Kimberly reached out to the CDH Foundation for support.

Ollie had spiked a high fever and was struggling to breathe. He was taken to CHOP where he was admitted and later diagnosed with human metapneumovirus, which is similar to RSV.

He would spend 5 days at CHOP before returning home.

We would like to extend a big thank you to Kimberly and Carlos for sharing their story with us. While we are so sorry this has been your journey, we are thankful The CDH Foundation could help relieve some of the stress so you can focus on what is most important, Ollie.

If you are reading this and would like to help babies just like Ollie not just survive but THRIVE in spite of CDH, please consider partnering with us! Visit: https://www.thecdhfoundation.org/5tothrive for more information.

Meet Vaughn...

4 months old, 3 surgeries, 2 amazing parents, 1 courageous little boy

“I never imagined I could be this mom with a sick baby. I 10/10 do not have the mental and emotional strength to pull it off, but just like Vaughn has some sort of super human toughness, Bob and I have been forced to hone that too! Even when he’s not the sickest baby in the hospital, like he was the day they put him on ECMO, we will likely always have our challenges. He will always have to be fighting. But GOSH what a sweet boy. He will get through this again one way or the other.”

Vaughn’s initial NICU stay was fairly short, spending only 39 days in the hospital before heading home eating orally and on minimal oxygen support. Unfortunately, his hospital journey does not end there. After a planned eye surgery to remove bilateral cataracts, Vaughn was taken back to the ER for vomiting the very next day. Tests revealed he had developed a bowel obstruction. During surgery doctors removed an adhesion of his bowel to his scar tissue from his CDH repair. During surgery, 2 inguinal hernias and an umbilical hernia were also repaired.

This is CDH. It does not end with the repair. It does not end when you come home. It is a battle. It requires strength, courage, endurance… CDH babies are courageous. CDH moms and dads are courageous. They don’t want to be, they HAVE to be.

Latricia had this to say:

“Since that day my husband and I have been taking turns staying at the hospital a full 24 hours so that one of us is always with Vaughn and the other is with our 3 older children. We have a 60 mile drive to the hospital and gas was adding up quickly. We were so thankful to the CDH foundation for acknowledging the unexpected struggles of having your baby back in the hospital. The grant they were able to provide is going to take a huge burden off our family as my husband and I continue to care for all 4 of our children. There is so much hope and support available from the CDH foundation and I couldn’t be more grateful!”

Thank you so much Latricia for sharing Vaughn with us. He is such an amazing reminder that CDH babies are so strong and resilient! I am so thankful The CDH Foundation could help relieve some of the stress so that you could focus on what is most important, your family.

If you would like to help babies just like Vaughn not just survive but THRIVE in spite of CDH, please consider partnering with us! Check out: https://www.thecdhfoundation.org/5tothrive for more information.