Our Mission

The CDH Foundation's mission is to help CDH families and Alabama NICU families navigate life with a medically complex child once home from the hospital. We strive to give each family we support the tools they need to stay whole and healthy, physically, mentally, emotionally and financially so that their families can thrive.

1 in 2500 children are diagnosed with congenital diaphragmatic hernia. This is a similar prevalence to spina bifida and cystic fibrosis. Surgical repair is only the first step in the process to having a child that thrives.

Our Story

The CDH Foundation was founded in 2017 by Justin and Jessica Quinn to support Alabama CDH (congenital diaphragmatic hernia) families. Originally it was called the Sensigreen CDH Foundation. CDH is a birth defect where a child’s diaphragm does not properly develop and causes significant issues with lung development, heart placement and digestive issues. CDH is as prevalent as cystic fibrosis and spina bifida, but unless someone knows a family that receives this devastating diagnosis, most have never heard of it. CDH still currently has a 50% mortality rate.

In 2019 we changed our focus from serving only Alabama CDH families to serving CDH families once they are home from NICU. Children born with CDH have the opportunity to thrive with excellent medical care. Surgical repair and a lengthy NICU stay are only the first steps. Families return home with a child who has fought a battle that would crush most adults and these babies still have to fight. With the need for multiple early interventions coupled with the worry of germs surrounding a baby with underdeveloped lungs and a compromised immune systems, most families choose to have one parent stay home. The stress of a medically complex child, medical bills, loss of income and learning a new normal weighs heavy on parents. The CDH Foundation strives to help families navigate all of these challenges so that parents can spend their time enjoying their family and creating an environment for their baby to thrive.

What is CDH? »

Our Programs

The CDH Foundation provides support and hope to families who receive a congenital diaphragmatic hernia diagnosis after they have returned home from a lengthy NICU stay. As we transition to our new name and new mission, please call us to learn what we can help your family navigate as you begin life with a medically complex child.

Alabama NICU families, feel free to contact us for help regardless of your child’s diagnosis. We can use the information we have collected for our CDH families to help you navigate life at home.

Resources for CDH Families »

50% of children diagnosed with congenital diaphragmatic hernia do not live to see their first birthday.

Learn more about CDH

CDH is the most prevalent and deadly birth defect you have never heard of…

There are multiple factors that can potentially cause CDH including genetics. At this time there is no known preventive therapy. Excellent medical care immediately following birth is the only hope a child born with CDH has.

Now what?

We just received a CDH diagnosis…we don’t know what to do…

NICU stays for children born with CDH vary in length. Most range from 1 to 3 months. Many families travel far from home to find the best care for their child.